• Date awarded: October 2020
  • Awarded value: £4,898
  • Fund: Small Grant Programme 2020
  • Location: Cystic Fibrosis Annual Review and Clinic (Children and Young Peoples Unit at QMH), Adhoc reviews (QMH and VHK), Admissions (VHK)
Cystic Fibrosis Boredum Busting

Provide a variety of durable, and infection control compatible, play resources for cystic fibrosis clinics and ward admissions for children and young people with cystic fibrosis.

Cystic Fibrosis (CF) is the UK’s most common life limiting inherited condition and requires strict infection control measures especially within the Hospital environment. This results in isolation from all other children and families with Cystic Fibrosis. Treatment burdens increase with age and/or due to infection and can become increasingly complex and demanding. Each clinic appointment is multidisciplinary with each patient being reviewed by up to 6 different professionals at each clinic visit which is stressful and onerous for parents and boring for the children and young people especially as they are isolated in a clinic room and unable to utilise the playroom or open areas due to infection control risks.

With this grant the CF Team will be able to offer better resources that are durable to withstand their stringent cleaning requirements to offer both distraction during clinical procedures but also meet the developmental stages of their patient group to enhance individualised patient play opportunities to minimise boredom and anxiety associated with lengthy clinic visits. This will also afford the parents the opportunity to have more meaningful discussions with the professionals with fewer disruptions from miserable children and young people.