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Children with Down Syndrome cervical instability patient information - children and young people

Advice and information regarding cervical instability.

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Produced by CYP Physiotherapy/EY/Cervical Instability DS information

CYP code: 1.13.3

Version 3

Date of issue: January 2017

Date of review: December 2024

Next review date: December 2026

If review date has passed, the content will apply until the next version is published

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Individuals with Down Syndrome may be at increased risk of cervical spine (neck) disorders. In a small number of cases, excessive movement (instability) of the bones of the cervical spine can cause pressure on the spinal cord.

What causes cervical instability?

The area between the skull and the top of the cervical spine (craniovertebral junction) is made up of small joints, muscles and ligaments.

Low muscle tone and ligament laxity in people with Down Syndrome may cause excessive movement at the top of the cervical spine as the head is moved, causing pressure on the spinal cord. 

Cervical spine diagram

Does my child need a cervical x-ray?

The incidence of cervical instability in childhood is very low. Routine x-rays are not recommended. Some competitive sports organisations, such as gymnastics, may require a cervical x-ray as policy.

An x-ray or MRI may be required if there are any signs of cervical instability.

What are the warning signs of cervical instability?

  • Pain at a spot near the hard bump behind your child’s ear
  • A stiff neck which doesn’t get better quickly
  • Unusual head posture
  • A change in the way your child walks so they may appear unsteady.
  • Changes in your child’s ability to manipulate things with his/her hands.
  • Incontinence developing when your child has previously had no problems.

If you are concerned that your child may have signs of cervical instability, contact your family doctor or hospital consultant.

For further information

https://www.downs-syndrome.org.uk/

https://www.downs-syndrome.org.uk/about-downs-syndrome/lifes-journey/healthy-lifestyle-physical-activity/

www.british-gymnastics.org

 

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