The MND Clinical Nurse Specialist is ideally placed to ensure a proactive approach in the delivery of timely advice and support for evidence-based patient-centred care. They act as the patient advocate, are a point of reference, support, education and guidance.
Palliative care for people living with MND starts at the time of diagnosis. This care continues throughout the disease trajectory and is crucial to care management at all stages of the disease process offering symptom control and best supportive care.
The specialist approach to care for people living with MND enables people living with the disease, together with their families, to retain as good a quality of life as possible, promoting abilities and maintaining independence.